Sherrill Mother Fights For ‘Miracle Drug’ Keeping Her Son Alive
A mother in Sherrill is fighting for a 'miracle drug' keeping her son alive and she needs you to join the fight.
Landen Smith was born with a rare immune disorder called XIAP deficiency and the only cure is a very risky bone marrow transplant. But after 3 years of searching, a match still hasn't been found. When it looked like all hope was lost, along came a trial drug. "It has been an absolute miracle," says Landen's mom Rebecca Shedd. "We went through so many different drugs to try and keep his disease under control and to be perfectly honest, I didn't have high hopes for this drug."
The trial drug worked and drastically changed Landen's life. "It's the best thing that has happened to us. He could finally just be a kid again. He's playing with his friends and going to school."
Next month the miracle may come to an end. The company making the drug that isn't FDA approved, doesn't have enough funding to keep running the drug trial. Rebecca is turning to social media in hopes of attracting the attention of big investors. "This is a drug worth funding and fighting for. Without it, I'm scared what will happen to Landen."
A video about Landen's miracle drug already has thousands of views on Facebook. Rebecca hopes people will join her fight by spreading the word on Twitter and YouTube too. "A simple click can save my son's life."
Keep up to date on Landen's progress on Team Landen Smith's Facebook page.