August 4 | 12:00 pm - 4:00 pm
Cost:
Free
Valentino’s Banquet Hall
3899 Oneida Street, New Hartford, NY 13413 United States
Contact:
Phone
3154000387
Email:
iand112987@gmail.com

Additional Information

Our son Liam has had many difficulties since birth. Even with therapy. His doctors couldn't figure out why he was low registered, fatigued, under responsive, low muscle tone through his body etc. after having ct-scans, MRIs, EEG's and still not being able to solve this mystery. We are finally on the right path. However he will have to have a muscle biopsy in Boston to find out which type of mitochondrial disease he has. Living with mito is like trying to use your phone on its last battery. There is no cure for this very rare disease. But with your help you can help us raise money and awareness. Your Donations, will help with medical expenses and trips back and forth to Boston's' Children Hospital, and medical expenses of the biopsy that the insurance wont cover.
Let's knock out mitochondrial disease together
Your donations will help with medical expensese, trips back and forth from boston, medicine and future expensise for him as his mito progreses. Thank you all so much!